A Note from Our Director
There’s been a lot of talk lately about advocacy for the lupus community. Some of that talk is the result of the extraordinary efforts of lupus warriors and families to have a unified voice and impact upon decision makers regarding patient-focused drug development (www.lupusPFDD.org). On September 25th, hundreds of advocates attended an eye-opening and gut-wrenching conference in College Park, MD, and advanced our collective mission.
Selena Gomez, who has willingly shared her lupus diagnosis, challenges, and triumphs, is also an advocate. The news of her recent kidney transplant helped increase public awareness on behalf of all who face and fight this disease every day.
We need more Selenas. We need more advocates. We need more champions. The words of those who know firsthand what it means to have lupus are the most powerful. Will you share your story with LAUNY so that we, too, can have a greater impact upon decision makers, medical professionals, law makers, researchers, and neighbors?
If so, please email me at firstname.lastname@example.org.
Wishing you your best life,
Lupus Alliance of Upstate New York