Programs and Services
New in Programs and Services
Information Packets
Packets containing general information about lupus and the services of our agency are sent to all who request them. Packets will also include a physician referral list if needed, information about specific topics you are interested in and dates for upcoming programs.
Our support groups are held in various locations throughout our service areas. The support group will provide attendees with an opportunity to discuss issues about coping with Lupus and other aspects of dealing with a chronic illness. For a list of support group locations and times, please click here.
Speaker`s Bureau
We train volunteers to speak about lupus and the programs and services our agency provides at meetings of local organizations, associations and schools.
All inquirers are called within a 2 week period of receiving a packet of information from our office. If they have further questions or need to speak to someone about a specific topic or concern, they are then connected at this time with a trained volunteer. To ask for a Telephone Buddy counselor please call the office at (716) 835-7161 or (800) 300-4198.
(Western New York area) These meetings are held every other month at the Lupus Office and are designed for those who are newly diagnosed with lupus (or those who have been diagnosed awhile but never attended any programs), their families and friends. There is a presentation by a trained facilitator and time for individual questions and discussion. There is no fee for this program, but registration is required. click here for meeting dates and times.
Doctor Referrals
We provide a list of specialists in Rheumatology, Nephrology and Dermatology who have indicated an interest in treating individuals with lupus. Call our office and we will help you locate a doctor in your area.
The Lupus NewsLink is published quarterly and provides current information about lupus, research updates, volunteer opportunities, chapter events and more. To receive the Lupus NewsLink click here to become a member.
A half day program specifically designed to meet the needs of the lupus community. Presentations are by specialists and other healthcare professionals who treat lupus patients .
There is a fee for this program and pre-registration is needed.
(Central and Northeastern New York service area) The Lupus Connections meetings are held quarterly in different locations throughout our service area in Central and Northeastern New York. They are designed to assist lupus patients in an informal way to access information and better understand ways to cope with chronic illness. These meetings will seek to connect individuals with the Lupus Alliance, others who are diagnosed with lupus, and also help significant others become better educated about this disease for more information click here.
The Cheryl Malke family awards an annual $1,000 scholarship in her memory at the Lupus Seminar in Western New York in April. Click here for an application or you can call the lupus office for an application to be mailed or e-mailed to you. Applications have to be received at the Lupus Office by January 31st. Applicants for the $1,000 award have to meet the following requirements:
Lupus patient or child of a lupus patient
Reside in Western New York
Acceptance into Professional or Graduate School
-or-
Undergraduate School with a minimum of 2 semesters of college
with a cumulative GPA of 3.0 or higher.
Preference will be shown to those entering careers in the medical field.