LEAN Forward: Syracuse
Aug
10
6:00pm 6:00pm

LEAN Forward: Syracuse

A lupus diagnosis comes with many questions. Often, those questions can swirl around health decisions, medication choices, and treatment options.

But this diagnosis can affect so many other areas of one's life…

Have you wondered how to protect your employment in the face of health concerns? Do you have questions about Social Security Disability? Wondering whether you should be keeping better records?

On August 10th, at 6pm, attorney Christopher Grover will share valuable information on the legal issues faced by those affected by chronic illnesses, including lupus and related autoimmune diseases. Bring your questions and get answers from our legal expert!

This LEAN Forward event will be a safe space for individuals with chronic illness, and those who love them, to learn how to become better advocates. This event is free, but registration is required. Call 800-300-4198, ext. 2, or email info@lupusupstateny.org for reservations.

We hope to see you there!

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May
20
4:30pm 4:30pm

Illumination: An Evening to Elevate the Conversation about Lupus

Innovation. Collaboration. Expansion. These are words that describe the past twelve months of service provided by the Lupus Alliance of Upstate New York to those suffering with lupus and related autoimmune diseases. It’s time, now, to share what we’ve learned.
Join us for Illumination, as we elevate the conversation about lupus and honor those who’ve helped us accomplish so much.

The evening will be hosted by the Barrel Factory, a newly renovated brewery in downtown Buffalo. VIP tickets feature a tour and tasting. A cocktail reception welcomes our guests at 5:15. Our program will recognize heroes in our community, who have helped us shine the light on lupus this year. 

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May
9
4:00pm 4:00pm

Charity Night at The Inn at Saratoga

The Lupus Alliance of Upstate New York will be the Charity of Honor in the Tavern & Side Room at The Inn at Saratoga. 20% of all food and beverage sales between 4 pm and 9 pm will benefit LAUNY and the Lupus community of NENY.

The Inn at Saratoga, established circa 1843, is located at 231 Broadway, Saratoga Springs, NY 12866. Judith Christian, executive director of the Lupus Alliance will be present to share information.

 

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CNY Walk to Shine the Light on Lupus
Apr
2
8:00am 8:00am

CNY Walk to Shine the Light on Lupus

Lupus is the least known major disease of our day. Those with the disease struggle with a multitude of changing symptoms, pain, and not knowing what is happening to them, for an average of five years, before even being diagnosed. Imagine waiting for anything for 5 years, let alone an answer to what’s hurting you!  What’s more, lupus affects each person differently, making the lupus journey a very lonely path.

The 2017 Walk to Shine the Light on Lupus is more than a fundraiser. It's a pledge to thousands of Central New Yorkers that they are not alone. We are walking with and for them, to provide the help and hope they need to be strong and to live their best lives. We are advocating, raising awareness and funding research for earlier detection, better treatment and, ultimately, a cure.

Your contribution will help provide vital resources, new patient orientations and support group meetings, free of charge, for lupus patients and their loved ones. With your help, we can shine the light on lupus and light their path.

Learn more here! 

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NENY Walk to Shine the Light on Lupus
Mar
19
7:30am 7:30am

NENY Walk to Shine the Light on Lupus

Lupus is the least known major disease of our day. Those with the disease struggle with a multitude of changing symptoms, pain, and not knowing what is happening to them, for an average of five years, before even being diagnosed. Imagine waiting for anything for 5 years, let alone an answer to what’s hurting you!  What’s more, lupus affects each person differently, making the lupus journey a very lonely path.

The 2017 Walk to Shine the Light on Lupus is more than a fundraiser. It is a pledge to nearly 13,000 North Eastern New Yorkers that they are not alone. We are walking with and for them, to provide the help and hope they need to be strong and to live their best lives. We are advocating, raising awareness and funding research for earlier detection, better treatment and, ultimately, a cure.

Your contribution will help provide vital resources, new patient orientations and support group meetings, free of charge, for lupus patients and their loved ones. With your help, we can shine the light on lupus and light their path.

Learn more here! 

 

 

 

 

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Living Your Best Life Symposium, Syracuse
Mar
11
8:30am 8:30am

Living Your Best Life Symposium, Syracuse

Learn the keys to living your best life! Our spring symposium in Central New York is a chance for you to focus on you and your health. This event is designed to empower people living with lupus and other autoimmune diseases.

Experts will share knowledge from their respective fields on how you can live your best life with an autoimmune disease. Question and answer session will follow. 

Our Agenda:

  • Continental breakfast
  • Speaker presentations
  • Q&A
  • Vendor tables following presentations.

Reservations must be made by March 1st to reserve your seat!

 

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Support Group Meeting
Feb
9
6:00pm 6:00pm

Support Group Meeting

All meetings are free. Reservations are required. Call (800) 300-4198, Ext. 2, to make reservations.

Western New York
Mount St. Mary’s Hospital
February 9, 2017; 6:00 pm to 7:30 pm
Room #249
5300 Military Road
Lewiston, NY 14092

Interested in Attending a Virtual Meeting?
Send us your information and we will keep you informed as virtual meetings are scheduled! 

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New Patient Orientation
Feb
7
6:30pm 6:30pm

New Patient Orientation

All meetings are free. Reservations are required. Call (800) 300-4198, Ext. 2, to make reservations.

New Patient Orientation (in person)

Lupus Alliance of Upstate New York

Tuesday, February 7, 2017; 6:30 pm to 8:00 pm

3871 Harlem Road, Buffalo NY 14215

Interested in Attending a Virtual Meeting?
Send us your information and we will keep you informed as virtual meetings are scheduled! 

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Support Group Meeting
Feb
2
6:00pm 6:00pm

Support Group Meeting

All meetings are free. Reservations are required. Call (800) 300-4198, Ext. 2, to make reservations.

Northeast New York
Macedonia Baptist Church          
February 2, 2017; 6:00pm to 7:30pm
26 Wilson Avenue
Colonie, NY 12205  

Interested in Attending a Virtual Meeting?
Send us your information and we will keep you informed as virtual meetings are scheduled!

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Support Group Meeting
Jan
12
6:00pm 6:00pm

Support Group Meeting

All meetings are free. Reservations are required. Call (800) 300-4198, Ext. 2, to make reservations.

Central New York
DeWitt Community Library          
January 12, 2017; 6:00pm to 7:30pm
Shopping Town Mall
3649 Erie Boulevard East
Syracuse, NY 13214

Interested in Attending a Virtual Meeting?
Send us your information and we will keep you informed as virtual meetings are scheduled! 

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