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Video Program Launch

September marks the beginning of Autumn and the halls of learning are abuzz. This Autumn also marks the launch of a new learning opportunity for the lupus community and others who struggle with chronic autoimmune diseases.

The Lupus Education & Advocacy Network (LEAN FORWARD) video series provides on-going education and support to those who are unable to attend in-person meetings. Monthly LEAN FORWARD programs will be shared on YouTube, available through LAUNY’s website and shared at in-person meetings.

If you are not already signed up to receive an email from LAUNY, do so today and we’ll keep you informed when the program launches and all the places and times it will be available to you. Sign up at lupusupstateny.org/meetings.

 
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Registration is required online by September 24th. There will be NO registrations accepted the day of the event. If you miss this registration cutoff, you have the following in-person registration options. LAUNY needs a final count for the food and the venue prior to the event.

If you can’t make your reservations online, you have the following options.

  • Additional in-person registration opportunities will be available at the following locations:

    • Thursday, September 26, 5pm to 7pm - 

    • Saturday, September 28, 9am to 11:30am -

    • Wednesday, October 2, 5pm to 7pm - 

  • Lupus Alliance of UNY Office; Mondays 2pm to 4pm or Thursdays 9am to Noon, 438 Main Street, Suite 203, Buffalo 14202

TEAM CAPTAINS and FUNDRAISERS… You will receive special instructions from LAUNY regarding any additional funds you have to submit. If you have additional funds to submit for the walk, please read: 

  • Mail checks to LAUNY before October 1, OR

  • Stop by the office or one of the remote locations listed above to submit the funds you’ve raised, OR

  • Bring final donations in a sealed envelope with your name, team name, and the total enclosed written on the outside of the envelope. The envelope will be processed after the walk. If an individual team member has earned a t-shirt or hat with the new funds being submitted, list the name and amount on the outside of the envelope as well. 

    Parking for the event-You have options!

  • Harbor Center parking ramp is across the street from Canalside and all-day parking is just $3. The Metro runs to the corner by Harbor Center, too, so you can park outside the city and take the train to the walk. There are several area parking lots, some with guards and some with meters. 

If you have questions about any aspect of raising funds, registering for the walk or the day of the event, call (716) 835-7161, Ext. 2. Can’t wait to see you all our WNY lupus heroes and good neighbors at LUPUS WALK 2019!

 
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LAUNY is seeking individuals in each region interested in serving on committees to raise awareness and create stronger networks of support and education for the lupus and autoimmune community. To learn more, contact Judy@lupusupstateny.org

Collect WNY DASH Market receipts. LAUNY receives a percentage back for DASH receipts submitted to our office. Does a supermarket in your area have a similar program? Let us know at info@lupusupstateny.org

Volunteer opportunities are varied, meaningful, fun and you get to choose according to your skills, interests and availability. Contact Susan at (800) 300-4198, Ext. 2, or at susan@lupusupstateny.org to learn more.

 

According to an article published in Lupus News Today on September 6, 2019, Phase 3 trials show add-on therapy with Anifrolumab reduces disease activity in SLE patients. Read the full article here.

 

ADVOCACY IN ACTION

Judith Christian, CEO of the Lupus Alliance of Upstate New York will present “Bridging the Gap Between Symptom and Diagnosis” to the doctors of the Catholic Health System’s Mercy Hospital on Thursday, September 19, 2019. Two additional hospital presentations will follow at Sister’s Hospital in Buffalo and Mount St. Mary’s in Lewiston.

Try-It Distributing is hosting a health fair for their employees and families and LAUNY will be there sharing lupus and autoimmune-related information, October 12, from 11am to 3pm.

Trocaire College has sanctioned the LUPUS WALK and many Trocaire students are volunteering for the event!