Clinical trials are necessary for the development of targeted, safe therapies for those affected by lupus, but participating in investigational studies is not for everyone. Before committing to taking part in a clinical trial, you should:
Know that those involved in the clinical trial process are bound by HIPAA (Health Insurance Portability and Accountability Act of 1996), which requires patient privacy.
Expect to sign an informed consent document, letting you know what the trial is about, what procedures are involved, and what the potential benefits and risks are.
Be given plenty of time to ask questions before signing up.
Contact the Lupus Alliance of Upstate New York for free literature on Clinical Trials.
Talk with your doctor.
LAUNY has received many requests for more information about clinical trials, especially, where to find local trials. Therefore, we are providing the following link to Antidote Me, a searchable database of clinical trials.
**The Lupus Alliance of Upstate New York does not advise patients on medical decisions of any sort, including whether or not to participate in clinical trials. LAUNY is simply a resource for more information. If you are at all uncomfortable with the idea or process of becoming involved in clinical trials, it is best to wait.