Patient and Family Services

Education

Information about lupus, physician and health facility locations, educational and community meetings, links to helpful resources, research updates and other relevant information is provided at no cost to lupus patients and caregivers throughout our service area. For a list of available publications, click here.

 New Patient Orientation

New Patient Orientation meetings are facilitated by an active member of the New York State and Western New York Physician Assistant Societies and former member of the board of the Lupus Alliance of Upstate New York (LAUNY) and provide patients with the opportunity to ask questions regarding symptoms and treatments. You do not need to be recently diagnosed to attend. The lupus journey is a changing path and you are welcome at every turn. We help patients understand the challenges they are encountering and the importance of advocating for themselves. Find an orientation here! 

 Lupus Education & Advocacy Network (LEAN FORWARD) Meetings

Regularly scheduled meetings help lupus patients and caregivers learn more and contribute to the conversation about lupus and related autoimmune disease. Subject matter experts make presentations on topics that are important to meeting attendees and allow plenty of time for questions. Following each presentation and Q & A, participants share stories, concerns, successes and encouragement with one another. The goal of each meeting is to provide the tools and support needed to better manage symptoms and live better lives. And, for those who cannot attend meetings, LAUNY hosts web-based meetings that link participants from every corner of our service area. Not interested in a group meeting? Ask to be connected with a Support Buddy, a person with lupus who can share one-on-one time over the phone. No one should face lupus alone. Find a meeting here! 

Regional Symposiums

Regional symposiums bring the lupus and autoimmune community together to hear the latest from medical professionals and quality of life experts who can provide additional tools for managing chronic illness and leading a full and happy life. 

Advocacy Training

Patients, caregivers and informed volunteers are the best advocates for the lupus community. LAUNY provides training, materials, and support to make every voice count. For free advocacy training, contact LAUNY. Advocacy is a meaningful, life-enhancing experience. 

Quarterly Newsletter

Tying together the 33 counties we serve, NewsLink provides news, meeting updates and information on programs and events that impact the lupus community. Sign up to receive your copy. Please consider receiving the newsletter by email, to help us save trees, as well as the cost of printing and postage.