Patient and Family Services
Education
Information about lupus, physician and health service locations, community-based meetings, research updates and other relevant information is provided at no cost to lupus patients, loved ones, care givers and advocates. For a list of available publications, click here. For additional information call LAUNY at (800) 300-4198, Extension 2, or write [email protected].
Lupie Love Notes
Whether you’re a Lupie warrior, loved one or advocate, there are many people who want you to know just how amazing you are. LAUNY is helping deliver those messages with Lupie Love Notes, daily messages FROM lupus warriors, loved ones and advocates TO lupus warriors, loved ones and advocates. Lupie Love Notes may be a beautiful photo, an inspirational quote, encouraging words, art, the link to a song… whatever warms the heart and feeds the soul. To submit a message, click here.
Lupus Education & Advocacy Network (LEAN FORWARD) Program
The Lupus Alliance of Upstate New York has upgraded the former support group meeting model to increase its value to lupus warriors and loved ones. LAUNY support meetings are now called Lupus Education & Advocacy Network (LEAN FORWARD) meetings. Each LEAN FORWARD program features information provided by subject matter experts on topics relevant to attendees. Community-based meetings are a great place for attendees to ask questions and to share stories, concerns, successes and encouragement with one another. The goal is to provide the tools and support needed to better manage symptoms and live better lives. Find a meeting here!
For those who cannot attend a meeting in person, LAUNY’s LEAN FORWARD Video Series is now available to all via YouTube and on this website (first release, December 2019).
New Patient Orientation
New Patient Orientation meetings are hosted by LAUNY trained facilitators in every region. You do not need to be recently diagnosed to attend. The lupus journey is a changing path and you are welcome at every turn. We help patients understand the challenges they are encountering and the importance of advocating for themselves. Find an orientation here! To view LAUNY’s LEAN FORWARD video Common Questions About Lupus, click the video release banner on our website landing page.
Regional Symposiums
Regional symposiums bring the lupus and autoimmune community together to hear the latest from health care professionals and quality of life experts who can provide additional tools for managing chronic illness and leading a full and happy life.
Advocacy & Facilitator Training
The best advocates for the lupus community are lupus warriors, family members, care givers and informed volunteers. LAUNY provides training, materials, and support to make every voice count. Self-advocacy is essential for anyone who has a chronic illness and community advocacy is a life-enhancing experience.
Meeting Facilitators are needed in every community. LAUNY provides training, materials and support and meetings are scheduled according to each Facilitator’s availability. Will you be the community leader who brings educational and empowering meetings to your community?
If interested in advocacy and facilitator training, contact LAUNY at (800) 300-4198, Extension 1.
Quarterly Newsletter
NewsLink is shared quarterly with all who have signed up to receive program and news updates by email. Beginning with the Winter 2019 issue, all issues will also be archived on our website. Sign up today!