BIG NEWS FOR 2020!
LAUNY Announces 2020 Program Focus
LAUNY will significantly extend program reach in 2020 by capitalizing on technology and establishing partnerships with multiple community-based organizations in 33 New York State counties. The goal is to provide meaningful support whenever and wherever it is needed.
Many factors can limit access to information and support – time, location, health, weather – over which we have no control. To remove these limitations, LAUNY’s monthly LEAN FORWARD programs will be available via YouTube and through our website, so they can be watched when the snow clears, when you have a day off, when you’re feeling better, whenever and as often as you wish. Each video features valuable information about lupus and how to your best life, shared by subject matter experts.
If you prefer attending in-person meetings with others from your community, there will be more meetings in more places as we continue to engage new facilitators and more partners.
If you are interested in facilitating a LEAN FORWARD meeting in your community, contact [email protected]. Training and support is provided, and schedules are flexible.
The much-anticipated first release of LAUNY’s LEAN FORWARD video program is ready for sharing. Common Questions About Lupus lays the groundwork for a better understanding about this disease for those who are recently diagnosed. It’s also a wonderful perspective to share with family and friends, so please do!
A new video will be shared each month, presenting valuable information on topics of interest requested by our lupus community. If you’d like to submit a topic of interest to you, simply email [email protected]. LEAN FORWARD videos will be shared on YouTube. Current and past episodes will be available through our website at: www.lupusupstateny.org/lean-forward-video-series
HIRING: Regional Community Coordinators
Looking for rewarding work to fill a few hours each week? LAUNY is hiring Community Coordinators to reinforce LAUNY’s presence and service within Western NY, Central NY, Rochester/Genesee Valley and Northeast NY. Four individuals will be hired, each to serve in their respective region. The position requires 10 to 20 hours per month to start and will grow in accordance with need and capacity.
If you are interested, contact [email protected] for more information. Please, NO PHONE CALLS.
Whether you are a lupie warrior, loved one or advocate, there are many people who want you to know just how amazing you are. Every. Single. Day.
We’re helping deliver that message with Lupie Love Notes, daily messages FROM lupus warriors, loved ones and advocates TO lupus warriors, loved ones and advocates. Lupie Love Notes may be a beautiful photo, touching story, inspirational quote, encouraging words, art, music… whatever warms your heart and feeds your soul.
Each message will arrive in an email. If you submit content for Lupie Love Notes, we will include (with your permission) your first name and city/town. We do this to remind every person who fights an autoimmune disease that they are never alone. We do it, too, because love has a way of making every journey more beautiful and manageable.
To submit your messages, simply click here. Please keep your messages as brief as possible and adhere to the guidelines posted in our link. Every message will be reviewed for appropriateness. Let’s share some love!
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Do you cope through creative expression?
There are many scholarly papers on the benefit of creative expression to help manage the physical and emotional stress of chronic illness and there are many more opportunities to develop creative interests available today than ever before. So, what’s your passion?
Many of LAUNY’s friends are truly artistic and the connection between their art and ability to cope with lupus is clear. Please share how you express yourself and what it means to you and be an inspiration to others!
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